Today my husband and I left our 20 week ultrasound appointment with a box that contained the gender of our little miracle and a heavy heart because of the fact that it was determined that something “wasn’t right” with our baby’s heart. Our doctors sent us to local women's hospital right away to meet with a specialized team of cardiologists. After more tests, the team of doctors determined that our baby has critical aortic stenosis. (In other words, the baby’s heart doesn’t and won’t ever function properly on its own. If the baby makes it to term, a series of open heart surgeries will be performed immediately to try to repair the major malfunctions within and around the heart. Mortality rate is high and the prognosis of survival with this type of heart defect is slim.) After returning home we decided to cancel our gender reveal party and focus our time and effort on our little baby. So we opened our box and found that our little miracle is a BOY!!!! Travis and I are strong in our faith and know that God’s Will will prevail. We don’t have answers and won’t ever know why our baby is that slim odd number with a serious critical heart defect. We don’t know what will happen tomorrow or on April 8th when he is supposed to come into this world. We do, however know that we can’t do this alone. Our journey ahead is going to be long and difficult. We are prepared to take each day a step at a time with God guiding us and comforting us. We need nothing more from all our friends and family, but prayers….prayers for our little guy, prayers for us, and prayers for our doctors.
Prior to finding out the gender, we had picked out a boy’s name….. Cael Ryan. To our surprise, we found out tonight that his name means “mighty warrior and victorious people”. That is exactly what this little guy is…a mighty warrior….a fighter!
Thanks so much for your prayers!
Travis, Tanya & Baby Cael
Tanya,
ReplyDeleteI'm praying for your family.
You are in my prayers!
ReplyDeleteI just stumbled onto your blog today through a Pinterest pin. As a fellow teacher and Christ follower, I'm lifting up your family in prayer. Posted on my desk at home where I sit is the following quote from Natalie Grant (singer) from a conference I went to a few years ago: "My faith doesn't protect me from pain, but provides me with peace." Praying for peace in your hearts as you take this journey!
ReplyDeletePraying for you and your husband, and for precious baby Cael.
ReplyDeleteBelieve in miracles and know that Cael is a special gift.
ReplyDeletePraying for Cael's healing and your family too.
ReplyDeleteSending prayers for your family and that sweet baby boy.
ReplyDeleteKim
Finding JOY in 6th Grade
Stumbled upon your site through pinterest and read your post. I am also Mrs. Lewis and a teacher and found out at 24 weeks that my baby had a heart problem. Prayers for you and your little boy. God has a plan for you and your little guy-he is after all, a child of God.
ReplyDelete“I am the Lord, the God of all mankind. Is anything too hard for me?”
ReplyDeleteJeremiah 32:27
“When I called, you answered me; you made me bold and stouthearted.” Ps 138: 3
Jesus Christ, “He is always wrestling in prayer for you, that you may stand firm in all the will of God, mature and fully assured.” Colossians 4:12
“I have posted watchmen on your walls, O Jerusalem; they will never be silent day or night. You who call on the Lord, give yourself no rest, and give him no rest until he establishes Jerusalem.” Isaiah 62:6-7
“Because He loves me,” says the Lord, “I will rescue him; I will protect him for he acknowledges my name. He will call upon me, and I will answer him; I will be with him in trouble, I will deliver him and honor him. With long life will I satisfy him and show him my salvation. Psalm 91:14-16
There are tender times in one’s life when God allows situations that are not understood. He gives His chosen, just enough light that is needed for the moment. God imputes all the faith needed and the trust is just walking out step by step in obedience. For your son is living in the perfect environment listening to his mommy and daddy teaching him God’s perfect love. Read to Cael, God’s word, start with Colossians 1:9-14 then move on to Philippians and read 2 John 1:4
Praying,
T Todd Weatherford, TX
I just came across your site. And read about Baby Cael. Praying for him and your family.
ReplyDeleteCoraLee Ott
Hagerstown, MD
God has amazing ways of bringing people together. I was on pinterest and repinned one of your ideas. I then joined your blog as I am applying for a third grade position in our school district. I then began reading your post about baby Cael. You and I are in a family that you will develop a relationship with as time goes on. I am a mommy of a 3 1/2 year old boy named Porter. Three weeks before Porter was born we learned that Porter had only developed half of his heart, hypoplastic left heart syndrome (HLHS). We live in Kansas and traveled to the University of Michigan, Ann Arbor, MI to deliver there and at seven days old Porter would have his first (the Norwood) of three surgeries. It is the BIGGEST emotional roller coaster of your life, but the fight is worth it every day. Porter had a rough start and a wasn't supposed to make it but five weeks after his first open heart surgery (OHS) my husband and I walk out of the hospital for the first time with our baby boy. I could've sat down right there in the parking garaged and cried I was so overcome with emotion/joy. Less than two months later we were back for OHS number two. It wasn't easy but I was assured and had confidence in the doctors that Porter was going to be okay. Porter flew through that surgery (Hemi-Fontan) and we were home back in Kansas in two weeks! It was then time to focus on making memories and bonding with Porter. We did just that. Porter grew, small, but grew at his own steady rate. When he turned two it was time for his third and hopefully final surgery (Fontan). That was hard! To turn him over to the surgery team. I had every ounce of confidence in them but this was my little boy, who I had bonded with, he had so much personality, I had been blessed with so much time with him, and had unselfishly (like all/most parents) put all my time and energy into him that letting all of my power go and putting his life in someone else's was just heart breaking. I will never forget the pain I felt in my chest that day when they came to give him the sleepy medicine so he wouldn't get upset when they took him away from us. I laid him in a Little Tykes red wagon after he went to sleep and they pulled him back into the prep room. That was the longest 4 hours! But when Dr. Hirsch (Porter's amazing surgeon) came into the waiting room with a huge smile on her face I knew my little Porter-man was going to be okay. We took Porter back home to Kansas one week from the day of his surgery! Today, he is only on one prescription medicine (captopril) that he take 3 times a day and he take one baby asprin daily.
ReplyDeleteI know your thoughts, feelings, etc that you are having right now. I was there and there are so many other mommies that have been there too. When I was there I remember thinking that one day I would be able to help mommies who have been just given the news that their unborn child had a heart defect like the mommies who were there for me. I am here, I want to be here to help you and your family. Please, please contact me if you need to talk, vent, cry, scream, ask questions, hear details, need recommendations on anything, whatever, I am here. My email is emd120682@yahoo.com, if you email me I will email you back my phone numbers and any other contact information. We also have a carepage for Porter as well were you can see pictures of him today (I need to update) and of when he were in the hospital. I'm also on facebook and have updated pics on there too.
Blessings to you, your family, and my prayers are with you all and baby Cael.
Heart mommy hugs,
Elisha Froetschner
Praying for you and your husband and your sweet baby boy!!
ReplyDeleteMy brother was born with this same diagnosis 34 years ago. He had a surgery when he was six months old and an aortic valve replacement when he was 17 1/2. He's suffered thyroid cancer twice but his heart ailment doesn't hinder his life. God is good!
ReplyDeleteI just so happen to find your blog while surfing the net and I hope your little Cael is doing great, I wish your Family strength and peace !! God Bless and the Best of Wishes from San Diego,
ReplyDeleteMyriam
Prayers for your family are coming your way!
ReplyDeleteBarbara
happyteachingfirst.blogspot.com
I have only recently been reading your amazing blog but I will be praying for you and your baby.
ReplyDeleteTanya,
ReplyDeleteI hope all is going well for you and your family. I am praying for you all.
Diane
Teaching with Moxie
I hope all is going well. I am "late" on this and am not sure what happened. In '83, my sister was born with a transposition of the greater vessels- the aorta was connected to the vena cava and her blood was circulating within the heart, and not being sent to the body. She is 29 now. God has some amazing plans and as the sibling of a heart patient I KNOW and have seen it. Praying for you!
ReplyDeletejust came across your page. I'm praying for your family.
ReplyDeleteOh I pray that all went well!!
ReplyDeleteMisty
Think, Wonder, & Teach
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